Rare Diseases

Humana’s program for rare diseases is designed to address the needs of less-common conditions. Through specific programs for each disease, participants receive information tailored to their individual situation, helping contribute to positive outcomes.

Program Goals

Our rare diseases program implements a team approach to address the individual's medical, educational, and psychological needs.

Conditions included

This program helps with the management of these 13 chronic, degenerative diseases:

Cystic Fibrosis
Hemophilia
Scleroderma
Polymyositis
Dermatomyositis
Lupus
Chronic Inflammatory Demyelinating Polyradiculoneuropathy (CIDP)

Parkinson’s Disease
Multiple Sclerosis (MS)
Sickle Cell Disease
Rheumatoid Arthritis
Myasthenia Gravis
Amyotrophic Lateral Sclerosis (ALS), also known as Lou Gehrig’s Disease

Services provided

The following are included in the program:

Disease-specific online tools and resources
24-hour, toll-free access to specially trained nurses for education, service coordination assistance, and general support

The bottom line

Among participants in the program:

93 percent of Cystic Fibrosis patients can perform daily airway clearance, lowering their risk for inpatient admissions
100 percent of hemophilia participants are aware of early bleeding symptom management
99 percent of Lupus participants are able to identify the warning signs of infections

These programs and tools are not insurance products and are not guaranteed under any contract. Humana is not required to provide these services.

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